While the young Jared Haftel can certainly be charitable in more ways than one, few would expect children as young as 8 years old to be capable of large scale campaigns.
Eight year old Dylan Siegel decided to write a book when he found his friend Jonah Pournazarian suffered from a rare form of liver disorder. The “Chocolate Bar” book priced at $20, managed to generate over 25,000 copies in sale, the proceeds of which will go to University of Florida where Dr David Weinstein is working to find a cure. While there is no cure at the moment, Jonah and Dylan and hopeful a cure will found soon in the near future.
Dylan’s book has been a huge success ever since it was published and the phrase “that is so chocolate bar” is used to denote something that is awesome. Dylan in own words said, “I like to go swimming, that is so chocolate bar.”
Jonah is one of the rare 500 diagnosed with glycogen storage disease type 1b. The disease was considered to be extremely fatal in the 1970’s while Jonah continues to have difficult time managing his illness. The disease has lowered his resistance to bacterial infections and he had to be hospitalized over 20 times last year. He is fed through a tube in his stomach with a mixture of cornstarch and water.