Jonah Pournazarian is the best fried of Dylan Siegel and he has a very rare disease called glycogen storage disease type 1B only 500 people in the entire world have this disease. It unfortunately has no cure. But only being 6 at the time he wrote the book Dylan just knew he needed to raise the money to help fund a cure.
Every 3 hours he has to be fed through a tube in his stomach a precise mixture of water and corn starch. It helps to keep his glucose level steady otherwise he would die from low blood sugar. They cannot miss an alarm because it would mean Jonah’s death.
Dylan Siegel has given his friend the gift of hope with his book bringing in one million dollars in sales. Every penny made of the book goes towards research. They are now closer to a cure